Shaping
Priorities for the Global AIDS Movement
Gregg Gonsalves, A85 and Sue Simon,
J84 are two Tufts alumni fighting on behalf of people
around the world who need HIV treatment
By Laura Ferguson
Back to main story: A Voice for HIV/AIDS
Gregg Gonsalves, director of treatment and prevention advocacy
at the Gay Men’s Health Crisis, contacted Tufts Magazine
recently, not to tell us he was going to the International
AIDS Conference—although we would have considered that
newsworthy. Instead, he hoped to draw attention to the ongoing
work of Tufts alumni, such as Sue Simon and Karyn Kaplan
(see main story on page 35), who are fighting on behalf of
people around the world who need HIV treatment.
“One thing that links Tufts alums doing AIDS work
is that we were in New York or in other U.S. cities in the
1980s and watched as HIV cut a path of devastation through
our lives,” says Gonsalves, a member of the Class of
1985. “We saw many of our friends die. We know what
it means to attend several funerals a week. Karyn, Sue, and
I have been part of the AIDS movement for a long time. As
our colleagues in the developing world started asking for
our assistance, we heard our own voices reflected back to
us; we could easily identify with the holocaust that they
were facing and all decided to take action.”
In addition to Kaplan, Gonsalves and Simon (among many other
Tufts alumni) are responding to those voices—voices
that now resound in a worldwide plea for help. According
to the World Health Organization, some six million people
living in the developing world are in urgent need of HIV
treatment. The number receiving that treatment is only about
seven percent, or some 400,000 individuals.
Advocating for improved access to health care on the international
level, says Gonsalves, is essentially a struggle for justice. “Why
should somebody in Malawi or Sri Lanka have less a right
to life than I do?” And he prods his listener to
imagine what would happen if nothing were done. “There
are 40 million people infected with HIV right now who are
going to die without treatment unless things change,” he
says. “Their deaths will be a cataclysmic event not
only for their families and friends, but for their communities,
countries, and continents.”
Gonsalves has worked on behalf of people with HIV since
1990, first as a member of ACT UP (AIDS Coalition to Unleash
Power)/Boston and then with ACT UP/NY. He co-founded the
Treatment Action Group (TAG) in 1992. In 1995, he found out
that he himself was HIV+. Now with the Gay Men’s Health
Crisis in New York, he works on access to treatment issues
for people with HIV/AIDS in the developing world as well
as on HIV prevention and AIDS research issues in the U.S.
Over the past few years, he and his colleagues in the AIDS
advocacy movement have been instrumental in pushing down
the price of drugs, setting the stage for wider access to
treatment for poor people around the world.
Last fall the World Health Organization announced that the
lack of access to HIV therapy was a global public health
emergency and committed its resources to treating three million
people in the developing world with antiretroviral therapy
by 2005. “For years, people said the drugs were too
expensive and treatment too complicated for poor countries,” says
Gonsalves, “but from Haiti to Brazil, from Thailand
to Malawi, we are now seeing programs that are successfully
treating HIV infection and offering millions of people a
new lease on life.”
Sue Simon, J84, who works in New York as associate director
of the International Harm Reduction Development Program (IHRD)
in New York, has seen firsthand how people living with HIV
are also victims of ill-placed policies and attitudes. She
recalls how a man living with HIV in Belgrade, Serbia, whispered
to her his greatest fear: If his condition became known,
he would lose his job, his apartment, and, worst of all,
be abandoned by his friend’s and family.
The anecdote is only one of many that she uses to illustrate
what she sees throughout Eastern Europe, Central Asia, and
the former Soviet Union. She works closely with more than
200 projects in 23 countries on initiatives targeting injecting
drug users that encompass a needle-exchange component as
well as projects relating to sex workers, street kids, HIV
prevention in prisons, harm reduction needs among ethnic
minorities, and methadone treatment.
Amidst spiraling HIV infection rates, she says, “conflict,
poverty, dislocation, and hopelessness have created a tinderbox
in which the AIDS epidemic has moved quickly and with devastating
consequences.” In Russia and Ukraine alone, the number
of people infected by HIV in the past five years has increased
by more than 500 percent; Eastern Europe as a whole now has
the highest growth rate of HIV/AIDS in the world.
The good news is that harm reduction, which emphasizes a
pragmatic and humanistic approach to diminishing the social
and physical concerns associated with drug use, has achieved
a foothold in almost every country in the region. “The
burgeoning activist movement in the region has never been
stronger,” says Simon. “Drug users and people
living with HIV/AIDS are spearheading self-help, treatment,
and advocacy efforts in record numbers. Services are more
holistic, encompassing medical, mental health, and social
care. The harm-reduction and human-rights communities have
made important linkages in the fight against draconian drug
policies. The Global Fund has awarded unprecedented funding
to 16 countries in the region to help prevent and treat HIV
and TB. I find hope in the tremendous leadership and commitment
of service providers and advocates, working under the most
difficult of circumstances, who care deeply about their communities.”
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